A Comparative Analysis of Indigenous Research Guidelines to Inform Genomic Research in Indigenous Communities
نویسندگان
چکیده
منابع مشابه
A Comparative Analysis of Indigenous Research Guidelines to Inform Genomic Research in Indigenous Communities
BACKGROUND: Genetic research has potential benefits for improving health, such as identifying molecular characteristics of a disease, understanding disease prevalence and treatment, and developing treatments tailored to patients based on individual genetic characteristics of their disease. Indigenous people are often targeted for genetic research because genes are easier to study in communities...
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15 صفحه اولPrinciples Relevant to Health Research among Indigenous Communities
Research within Indigenous communities has been criticised for lacking community engagement, for being exploitative, and for poorly explaining the processes of research. To address these concerns, and to ensure 'best practice', Jamieson, et al. (2012) recently published a summary of principles outlined by the NHMRC (2003) in "one short, accessible document". Here we expand on Jamieson et al.'s ...
متن کاملSeeking consent for research with indigenous communities: a systematic review
BACKGROUND When conducting research with Indigenous populations consent should be sought from both individual participants and the local community. We aimed to search and summarise the literature about methods for seeking consent for research with Indigenous populations. METHODS A systematic literature search was conducted for articles that describe or evaluate the process of seeking informed...
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ژورنال
عنوان ژورنال: International Indigenous Policy Journal
سال: 2012
ISSN: 1916-5781
DOI: 10.18584/iipj.2012.3.1.6